I'll admit, I hold my breath every time I take Bernadette to the cardiologist. Even when I see any number popping up on my phone from that general area, my heart skips a beat.
She has taught me how to create space in my life and include people of all abilities and to love them for who God has created them to be. She is a huge asset to our family and those around us as she teaches us to see life through a lens of compassion and full of love.
I cannot change the past or what I have walked through. Instead, I can acknowledge the presence of the memory and remind myself that by God’s grace, I made it through.
Dear mamas who have gone before me, I know you are out there, hustling. Strong and brave as you forge the way for your child with different abilities. Each and every day you fight for your child to be seen, to be accepted, and included. You advocate hard, with kindness, for your child’s voice to [...]
There is nothing like the closing of year to get you to start thinking about new goals for yourself and your family for the new year ahead. It’s a time of reflection, looking back on the year that is passing to see what worked well and what didn’t. It’s a time to reevaluate where you [...]
There is something so magical about the start of the New Year. It feels like a fresh beginning, a time of reflecting on the past year, deciding what worked and didn’t work, and making plans for the year to come. I look back on 2018 and I have a strong sense of accomplishment. I set [...]
Today marks two years since I handed my tiny eight week old newborn over to the heart surgeon for open heart surgery. Her second major heart surgery in her short little life, this one to repair her main heart defect that was discovered in utero. I still cannot believe we lived through it to tell [...]
I walked outside of the gym this morning after my workout to a pleasant autumn morning. The cold air felt so good on my face as I made my way to the car. I took a deep breath in and looked around at the autumnal scene surrounding me. Leaves in all shades of yellows and [...]
This space. This blank page. Waiting for my thoughts to get out on the crisp white background. Yet, it's remained blank. Almost the entire month. The greatest month. The month that I could be writing about all the amazing things that are Down syndrome and how it has changed my life. And yet, I haven't. [...]
I wrote this article a handful of months ago, in the thick of CPAP. I never published it. And then today, our pastor gave a whole message on rest. I thought back to this article as I sat in the congregation this morning. It was burning a hole inside of me and I knew I [...]